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Photovoice: The power of photography brings teen cancer patients and siblings together
13 minute read

Photovoice: The power of photography brings teen cancer patients and siblings together


“I’ve been on a journey from sickness to health - I’ve gone from needles in my arms to a camera in my hand.” Teens in the Photovoice therapeutic program experience their cancer journeys through a different lens – the camera lens.

By Ryan Durgy, Intern, Communications and Public Affairs

Group of teens and staff pose for a group image in the SickKids cafeteria.
The 2019 Photovoice social workers and participants. From left: Shawna, Angela, Sabrina, Sonia, Siham, Kiera, Ryan, Athrun, Alex, Wendy, and Marcus.

As Childhood Cancer Awareness Month wraps up, the focus is on an innovative therapeutic program at SickKids which helps teens experience their cancer journeys through a different lens – the camera lens.

In its third year, Photovoice is a therapeutic photography program focused on creating a supportive peer-focused environment aimed at bringing a voice to teens with varying cancer diagnoses, while facilitating better communication between patients and their health-care teams.

“I’ve been on a journey from sickness to health - I’ve gone from needles in my arms to a camera in my hand,” Alex, 15, shared at the Photovoice exhibit, Through the Eyes of Teens with Cancer & Teen Siblings of Cancer Patients, as he discussed his treatment with Hodgkin’s lymphoma.

Alex said he was shocked about his diagnoses, relieved there was treatment and happy when his treatment was successful.

“I’ve had my own cheerleaders and champions here at SickKids,” Alex said. “The teammates on my journey have always been supportive and cheerful in the roles they played in my treatment. I had my own peer group thanks to Photovoice. I never felt alone.”

This year, for the first time, a Photovoice group for teen siblings of cancer patients was facilitated at the same time as the patient group. The exhibit featured photography from all nine participants of the program.

As the oldest in the family, Sabrina’s, 17, world changed when her younger sister Siham was diagnosed with Hodgkin’s lymphoma.

“Photos speak louder than words, which for the most part is true,” Sabrina shared. “Pictures say things that many can’t with their own words. Photovoice gave me an opportunity to speak my mind when I kept quiet during the circumstances my family had to go through.”

The seven-week program gave patients and siblings the opportunity to discuss the photos they took weekly, which focused on themes such as changes, feelings, restrictions and hope. The group was run by social workers in the Division of Haematology/Oncology. Sonia Lucchetta and Angela Yohan, oversaw the patient group, while Wendy Shama and Shawna Markowitz oversaw the teen sibling group.

“Those of us who work with teens know all too well that the demands of treatment can have a significant impact on their lives, particularly around their ability to engage with their academics, extracurricular activities and their all-important peers,” said Lucchetta.

According to Sonia, in Ontario 140 teens are diagnosed with cancer each year – with 60 per cent of them being treated at SickKids.

“Cancer has a significant impact on all family members and siblings are often left out, as the focus is on the child going through treatment,” Shama added. “We felt it was important to also provide the opportunity for teen siblings of cancer patients to connect with other teen siblings.”

The audience at the Photovoice exhibit viewed the photos, which were accompanied with narratives participants shared in their group sessions.

Teen stands next to framed photograph of trees.
Alex, 15, was part of the patient group and showcased his photos of a tree changing with the seasons.

“When I first came to the hospital, I was very scared,” Alex said. “When I found out about the treatment I needed – I hated needles, it was one of the scariest things ever… but it got better over time.”

Alex said his photo of a tree in the winter without its leaves represents his diagnoses, while the tree growing new leaves in the spring represents his successful treatment and him feeling better again.

“I didn’t really have anybody to talk about my feelings with until I found the Photovoice group,” Alex said. “I felt better about sharing how I felt and seeing how everyone else was feeling. It was all similar – everyone kept feeling better the more they got through it.”

Two young women.
Sabrina, 17, and her sister Siham, 16, shared their unique stories and photos.
Young woman stands next to image of books, framed on an easel.
Siham, 16, tapped into her passion for reading to help her get through her treatment for Hodgkin’s lymphoma.

With 30 books in her collection, you could say that Siham is a bit of a bookworm – something her photo on display at the Photovoice exhibition showcased.

“When I was going through treatment for the past couple of months, I would always take out a book and read it,” Siham said. “I enjoyed it because it distracted me from what was going on and I could relate to what the characters in the book were going through.”

Smiling teen stands next to framed image on an easel.
Sabrina, 17, was part of the Photovoice sibling group and shared her photo of support for her younger sister.

Sabrina’s photo features a special moment captured with her younger sister – holding hands as a show of support for her sibling as she underwent treatment.

“This photo represents me being there beside her and having her back,” Sabrina said. “Whatever she is going through, I’m going through it too and she’s not alone.”

Three children stand with their arms around each other.
Sibling smiles with Athrun, Ryan and Kiera at the Photovoice exhibition.
Teen boy stands next to framed image on an easel.
Ryan, 16, was part of the patient group and took his photo while on a bike ride through the cemetery.

After five weeks of treatment for lymphoblastic lymphoma, Ryan took his photo after returning home as an out-patient.

“The first thing I started to do after coming home was going on bike rides because I wasn’t back in school yet,” Ryan said. “I would go to the cemetery in the evening, grab a seat on a bench and relax there and think about stuff.”

Young boy stands next to framed image on an easel with his arm around it.
As part of the sibling group, Athrun, 12, took this photo of a bird near his home which reminded him of his brother.

As the seasons transitioned from winter to spring, Athrun snapped a picture of a bird perched on a telephone wire near his home.

“My older brother, Ryan, was diagnosed with cancer in the winter,” Athrun said. “He was going through intense chemo at the time. It’s spring in my picture and the bird represents my brother coming home soon as the seasons change."

Young girl stands next to her photo, framed and on an easel.
Kiera, 14, joined the sibling group and showcased her photo representing change.

“When you hear about cancer it’s an overbearing word,” Kiera said. “In my picture you can see a reflection out a car window, which shows more detail and a change to the original picture.”

Kiera spoke of another picture she took during the program, which became increasingly meaningful as the result of a printing error.

“It was upside down when it was printed out, which I thought was cool because it reminded me of how your world can be turned upside down when someone you love is diagnosed with cancer.”

Clearly, the photos provided a snapshot into the unique stories of the patients and siblings involved in the program and helped everyone involved see the bigger picture.

The Photovoice program is supported by the Garron Family Cancer Centre.

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