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SickKids joins national initiative for data sharing to help diagnose rare disease
Summary:
SickKids announces its collaboration with CHEO and other Canadian Institutions as part of the All for One Precision Health Partnership.
On Rare Disease Day, The Hospital for Sick Children (SickKids) announces its collaboration with other Canadian institutions as part of the All for One Precision Health Partnership— a national initiative for secure data sharing between Canadian diagnostic laboratories. The partnership aims to improve diagnosis, treatment and outcomes for patients with rare disease by sharing genome-wide sequencing data across Canada via the Clinical Genomics Network.
“Genomic data sharing between provincial diagnostic laboratories will greatly benefit SickKids’ Precision Child Health movement, which is transforming how we deliver care to account for the unique characteristics of each child — including their genetic code,” says Dr. Martin Somerville, All for One Project Co-Leader, Molecular Geneticist at SickKids, and Project Investigator at SickKids' Research Institute. “By sharing and making data more available for physicians and researchers, All for One can help improve equitable access to health information and inform timely diagnoses for patients across Canada.”