Down Syndrome Clinic
- 555 University Avenue, Clinic 9, Burton Wing, Main Floor
About the Clinic
Children with Down syndrome require extra support developmentally and medically. The Down Syndrome Clinic is a central hub designed to facilitate comprehensive and streamlined access to health care, funding, and other programs across the GTA that will help children get the best start at life.
What to bring:
- Any completed forms that were provided to you prior to your appointment: intake forms, ABAS forms, Consent for Disclosure of Personal Health Information.
- Therapy reports (e.g. OT, PT, Speech)
The Down Syndrome Clinic is in Clinic 9 on the Main floor of the hospital in the Burton Wing. Please register at the reception area at Clinic 9.
What to Expect During Your Visit
At your first appointment, you will meet the Down syndrome team (a paediatrician, a developmental paediatrician, a nurse, and a social worker). Also present at the appointment will be a representative from Surrey Place Centre’s Infancy and Early Childhood Program. Your appointments will be between 60 and 90 minutes. During the first appointment, we will take a health history of your child, provide information on Down syndrome and explain the specific health and developmental needs of children with Down syndrome.
We will see you and your child every 6 to 12 months, and will ask you to complete developmental assessments on your child as they grow. We will see your child in the clinic until they start school (typically around 4 years old).
We expect our patients to maintain close contact with their regular family doctor/paediatrician, as the Down Syndrome Clinic does not provide primary care.
Information and referrals
If you are a health-care provider and wish to make a referral to our clinic, please review our referral process.
For family members of children with Down syndrome, you can make a referral to early intervention, speech and language, respite, and audiology (before 12 months of age) services in our directory. These do not require a doctor's referral.
You can find links to our resource directory in the resources below. These include early intervention services, family support networks, child care and schools, programs, and medical information on Down syndrome.
- Welcome letter (pdf)
- Guidelines for Families of Children with Down Syndrome - American Academy of Paediatrics (pdf)
- Down syndrome resource guide
Coming to a clinic appointment
It's important to come prepared and be on time for a clinic appointment. Visit Coming for Clinic Appointments to read appointment guidelines that are applicable for most clinical appointments at SickKids.
You’ll find information on how to prepare and what to bring, what to do if you/your child are sick before your appointment or you need to cancel, and important things to know about the SickKids philosophy.